Impacto da doença oncológica na saúde mental de familiares e cuidadores
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2017
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O presente estudo teve como objetivo proceder à adaptação e validação do Inventário de Experiências Subjetivas de Sofrimento na Doença (IESSD) para uma versão familiar Inventário de Experiências Subjetivas de Sofrimento na Doença – Versão Familiares (IESSD-F) e avaliar as suas propriedades psicométricas. O presente inventário avalia o mesmo construto do original, o “sofrimento”, bem como o seu enquadramento concetual, numa perspetiva normativa e adaptativa do sofrimento, neste caso, centrado na experiência do familiar. No estudo de adaptação/ validação participaram 96 familiares e/ou cuidadores de doentes oncológicos, seguidos no Centro Hospitalar de Trás-os-Montes e Alto Douro, com idades compreendidas entre os 18 e os 67 anos (M=37.40, DP=12.11). O IESSD-F permite avaliar a intensidade de sofrimento subjetivo na experiência de doença de um familiar no global, bem como nas suas cinco dimensões (sofrimento físico, sofrimento psicológico, sofrimento sociorrelacional, sofrimento existencial e experiências positivas de sofrimento). O estudo de validação inicial revelou uma boa consistência interna para a escala total e para as respetivas subescalas, excetuando-se as experiências positivas de sofrimento, que evidenciaram um valor de alpha baixo. Este estudo conduziu ainda argumentos de validade facial, de conteúdo e concorrente. Na validade de construto, tendo por base a análise de componentes principais, a organização fatorial não coincidiu com a escala original, havendo dispersão dos itens pelos diferentes fatores. Sugere-se a necessidade de novos estudos de validação do IESSD-F, com recurso a amostras com maior número de participantes, dado a análise fatorial não ter atingido valores satisfatórios.
This study aimed to make adaptations / Inventory validation Subjective Experiences of Suffering in disease (IESSD) for a family version (Inventory of Subjective Experiences of Suffering in disease - Version Family, IESSD-F), and to describe their psychometric properties. This inventory was developed in an attempt to measure the construct "suffering", serving a normative perspective of caregivers and not only to psychopathology. It was applied to a sample of 96 families of oncological patients, aged 18 to 67 years. The IESSD-F allows to evaluate the intensity of subjective distress in a family disease of experience in the global as well as in its five dimensions (physical, psychological distress, sociorrelacional suffering, existential suffering and positive experiences of suffering). The study of initial validation showed good internal consistency for the total scale and for the respective subscales, except the positive experiences of suffering, which showed an alpha low value. This study also led arguments of face validity, content and competitor. Construct validity, based on the principal component analysis, factor organization did not coincide with the original scale, with dispersion of the items by different factors. It is suggested the need for further validation studies IESSD-F, especially at most diverse situations of disease and more numerous samples.
This study aimed to make adaptations / Inventory validation Subjective Experiences of Suffering in disease (IESSD) for a family version (Inventory of Subjective Experiences of Suffering in disease - Version Family, IESSD-F), and to describe their psychometric properties. This inventory was developed in an attempt to measure the construct "suffering", serving a normative perspective of caregivers and not only to psychopathology. It was applied to a sample of 96 families of oncological patients, aged 18 to 67 years. The IESSD-F allows to evaluate the intensity of subjective distress in a family disease of experience in the global as well as in its five dimensions (physical, psychological distress, sociorrelacional suffering, existential suffering and positive experiences of suffering). The study of initial validation showed good internal consistency for the total scale and for the respective subscales, except the positive experiences of suffering, which showed an alpha low value. This study also led arguments of face validity, content and competitor. Construct validity, based on the principal component analysis, factor organization did not coincide with the original scale, with dispersion of the items by different factors. It is suggested the need for further validation studies IESSD-F, especially at most diverse situations of disease and more numerous samples.
Descrição
Dissertação de Mestrado em Psicologia Clínica
Palavras-chave
Cancro , Família , Sofrimento , Doença oncológica